Tuesday, July 26, 2011

Huntington's annual app

So I had my annual huntington's appointment/check-up/researchy thing last week. The very good news is that I'm not symptomatic (yet). Yay! I guess I knew that already but it's always nice to hear especially when you know that sooner or later at one of these things, they're going to say that it has started.

Gulp!

But not this year.

Phew! : )

It was a bit of an odd appointment to be honest in light of my current condition. Whilst my answers to most of the questions will have remained pretty constant, there were a number directly influenced by our pregnancy...

- are you tired? yes.
- are there days when you feel too tired to do anything? yes.
- do you sleep through the night? not anymore! loo breaks and position adjustment are required.
- do you have trouble with household chores? hmmm... anything that requires bending is definitely tricky.
- do you need help with household chores? see answer to above.
- do you have trouble dressing yourself? see answer to above.
- are you still doing your hobbies? bit tricky when apparently they seemed to be on the dangerous side. I have started new ones though - do I get bonus points for that? : )
- do you have lower back ache? yes
- do you have aches and pains? oh yes.

Some of the other questions were quite random and Mr F now thinks actually he might be showing more signs than me! Ha ha.

I was getting a bit frustrated by the end of it as it's such a long day. And so many questions and tests but it was good to do something/anything that can help. And to be fair, being pregnant got me out of the MRI scan so the day was slightly shorter than it should have been.

God knows what my answers will be like next year once little embie has arrived! Am I tired? Do I sleep through the night? Do I manage my household chores? Answer: Are you having a laugh?!

4 comments:

Confessions of a Mother, Lawyer & Crazy Woman said...

Where do you go for treatment? My dad has HD (not good news for me) and his appointment at Hopkins seems a lot different from this.

Shona said...

Congratulations on no symptoms!

Anonymous said...

Hi Angela,

Had a good laugh at your post :-) And congratulations on yet another HD-free year. Who knows after all? Any of us might get hit by a car tomorrow.

Rianon

Diane J Standiford said...

My best friend at my assisted living home has Huntington's, she adopted, but I'll have to ask her how she dealt with all the usual baby, er, drama, I mean, joy. :)
Glad no symptoms!